Links To Consider
Family of COPD Support Programs
(COPD-Support, Inc.) This is
a support group composed of individuals who have COPD or caregivers who
look after the needs of an individual who has COPD. There is no charge
for becoming a member. Message traffic is heavy but there are options
for having a digest once a day with all the traffic for the day.
The site also offers a caregivers list, COPD Forum, Scheduled Chats 7 days
a week, a SmokeNoMore Program, A COPD Newsletter and Emergency Contact
List known as their "Buddy Groups".
American Lung Association
This is the national association which provides a
great deal of literature concerning lung diseases and describes recommended
general treatment. Information is free and is paid for through individual
donations. The ALA has an active fund-raising program to defray expenses.
The Pulmonary Paper
A periodical which provides news of interest to COPD
and other pulmonary patients. Presently, they do not have an online
subscription system but will provide a single copy free for evaluation.
A Source of Links
This is a list of quality lists maintained by the
Family of COPD Support Programs mentioned above.
Second Wind Lung Transplant Association,
Inc. The closest thing to a cure
for those with COPD is lung(s) transplant or Lung Volume Reduction Surgery
(LVRS). The Second Wind Lung Transplant Association is an organization
that focuses their activities toward that goal. While there are a
number of subscribers to this list that are COPD patients, the majority
have other lung diseases and are a tad younger than the average COPD patient.
Compilation of Pulmonary
Definitions This is an excellent
reference for acronyms, abbreviations and definitions for most pulmonary
terms. Sandi Wood, who authored this offering, has done extensive
research to provide a reliable source of this information in terms which
the lay person will understand.
and Research Foundation (PERF) Their
literature says that they are a small but vigorous non-profit foundation
dedicated to providing help for those with chronic respiratory disease
through education, research, and information. What they do not say
in this publicity header is that their web site is written in such a manner
that the average individual will understand what they are talking about
and that they have professional pulmonary doctors and nurses on the board
of directors. This foundation also publishes a newsletter of interesting
and informative pulmonary information called Second Wind (Not to
be confused with the Second Wind Lung Transplant Association).
We normally do not link commercial sites but this one is a little unique as it offers a free magazine mailed to your door.
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Copyright ©1997- 2005